How the Epoch Epilepsy Diary app handles your information. Last updated October 2026.
Epoch is operated by Epilepsy Network Australia (ENA), in partnership with Synthesis Neurology. In this policy "we", "us", and "our" mean Epilepsy Network Australia. We comply with the Privacy Act 1988 (Cth), the Australian Privacy Principles (APPs), and applicable state health-records legislation including the Health Records Act 2001 (Vic).
We take the privacy of health information seriously. This policy explains what information the app collects, how it is stored, and what happens when you choose to share it with your doctor or neurologist.
The app only stores information that you enter yourself:
We do not collect Medicare numbers, health-fund details, address, phone number, or any government identifiers.
All information you enter stays on your device. The app does not transmit any data to our servers, to any third party, or to any cloud service. There is no account, no login, and no internet connection required to use the app. This means: if you delete the app, your data is deleted with it; if you change devices, your data does not transfer automatically; and no one at Epilepsy Network Australia can access your diary. We recommend you keep a device backup (for example via iCloud or Google backup) so your diary is not lost.
The app can generate a PDF summary for a date range you choose. You choose when to generate the report and how to send it. When you share it, your device's standard sharing function opens and you choose where to send it — for example by email to a doctor you have added, via secure messaging, or by showing it at your appointment. We do not send anything on your behalf. You are responsible for choosing a safe and appropriate way to share your report.
The information you record — including seizure types, medications and triggers — is "health information" and "sensitive information" under the Privacy Act, and we treat it with the highest level of care. Because your data is stored only on your device, it is protected by your device's own security (screen lock, biometric authentication, device encryption). We strongly recommend you use a screen lock and keep your operating system up to date.
If this app is used to record information about a child under 18, a parent or guardian should set up and manage the app on the child's behalf. By using the app for a child, you confirm that you are the child's parent or legal guardian and consent to the collection and storage of the child's health information as described in this policy.
You have the right to access the information held about you (APP 12) — all of it is visible within the app at any time; to correct information that is inaccurate (APP 13) — you can edit any entry; and to delete your information — you can delete individual entries or all data by uninstalling the app. Because we do not hold your data on our systems, it is entirely within your own control.
This version of the app does not use any analytics software, crash-reporting tools, advertising networks, or third-party SDKs that collect data. The app does not make any network requests except to download itself from the App Store or Google Play.
When you download the app, Apple and Google collect information about that download in accordance with their own privacy policies. We do not receive personally identifiable information from Apple or Google about individual users.
If we make material changes — for example, if a future version introduces cloud sync or accounts — we will notify you within the app and ask for your consent before collecting any new types of information.
If you have a question or concern about your privacy, contact Epilepsy Network Australia at referrals@epilepsynetwork.com.au. If you believe we have mishandled your information and we have not resolved your concern, you may contact the Office of the Australian Information Commissioner (OAIC) at www.oaic.gov.au.
We acknowledge the Wurundjeri Woi Wurrung people of the Kulin Nation as the traditional custodians of this land. We pay respect to their Elders — past, present and emerging.
